Living with Long COVID
“It’s really not something you can push through.” — Dr. Abigail Bosk
Many hospitals now offer post-Covid clinics or recovery programs, which bring together doctors with experience treating long Covid patients. Given the number of patients, some doctors and programs have long waits for appointments. It can help to plan ahead and try multiple options.
— Survivor Corps keeps a directory of post-Covid clinics.
— Dysautonomia International offers a list of doctors with experience treating autonomic disorders commonly seen in long Covid.
— Body Politic hosts a Covid support group where thousands of long haulers share information and advice on Slack.
— The Long Covid Support Group hosts a community on Facebook.
— The Royal College of Occupational Therapists offers advice for managing post-Covid fatigue.
— An essay from Maria Farrell offers advice on how to get well, and the importance of making time to rest.
— ME Action, a group supporting people with ME/CFS, offers advice to long Covid patients on how to manage symptoms.
— Americans with long Covid may qualify for disability benefits, although without conclusive medical results, many people face roadblocks.
— Three leading researchers into long Covid often share information about the latest findings on Twitter: Dr. Amy Proal, a microbiologist at PolyBio Research Institute; Dr. David Putrino, the director of rehabilitation innovation for the Mount Sinai Health System; and Dr. Iwasaki, the Yale immunologist.
— Health Rising covers the latest research into long Covid, ME/CFS and other chronic illnesses in detail.
— Gez Medinger, a video producer, interviews some prominent researchers into long Covid on YouTube.
— A video interview with Dr. Svetlana Blitshteyn, a neurologist and the director of the Dysautonomia Clinic, offers advice for treatment and an overview of current research into autonomic disorders.
— A detailed guide to understanding, treating and living with orthostatic intolerance is available from the Johns Hopkins Children’s Center.
The Times has written extensively about long Covid, including:
— One patient’s painstaking path through long Covid rehab.
— A profile of children who struggle with long Covid.
— The worsening of long Covid symptoms after exercise.
— The four factors that may increase the chances for long Covid.